She’s a web star before she might actually give the signal “viral.”
Ayla Summer Mucha, a newborn child who was brought into the world in December, has turned into a TikTok star after her folks started involving the stage to bring issues to light for her condition in which she was brought into the world with a
“super durable grin.”
Cristina Vercher, 21, and Blaize Mucha, 20, were excited to meet their infant, yet were given the amazing news that Ayla’s mouth was not “typical.” The infant had created two-sided macrostomia, a super uncommon condition where the edges of the mouth don’t meld as expected while in the belly.
“Blaize and I didn’t know about this condition nor had I at any point met somebody brought into the world with a macrostomia,”
Vercher, who lives in South Australia, told Jam Press.
“So it came as a gigantic shock.”
A similar report distributed in Cleft Palate-Craniofacial Journal in 2007 noted only 14 cases. While it’s conceivable that events might have ascended since, the condition is still uncommon to the point that it was the initial time the specialist at Flinders Medical Center had at any point seen it.
What’s more, the ultrasound examines had not gotten the strangely huge mouth opening, which stunned specialists after they played out a C-segment.
“A cesarean is an awkward encounter all things considered,” Vercher said. “I was at that point in an overpowered state.”
The new mother said that when she saw her little girl interestingly, the condition was
“self-evident” since Ayla “was so minuscule.”
“We were in a split second stressed,”
she said, noticing it would be hours until specialists informed them about the condition.
“This made the experience all the more worrying as it took several hours for a doctor to give us an answer,”
“With this came more difficulties as the hospital had little knowledge or support for such a rare condition.”
“All I could think about as a mother was where I went wrong, especially when I had been so pedantic throughout my entire pregnancy,”
They were reassured by an array of doctors that it was out of their control as parents and not their fault as they waited for genetic testing to be completed. Eventually, the doctors diagnosed Ayla with the condition.
Macrostomia, though, is more than just a cosmetic abnormality — it can affect how infants function, especially with latching and suckling. Because of the impact it has on facial functionality, patients with macrostomia are often told to get surgery.
“We are yet to receive the exact specifications of the surgery, yet we know this involves a skin closure that results in minimal scarring,”
“The challenges we will face post surgery are worrying as a couple.”
But the adversity didn’t stop the family from losing hope. A few months later, they created the TikTok account @cristinakylievercher to raise awareness about the condition, in the hopes they might find more answers.
On their account, which has over 118,000 followers, they share heartwarming clips of Ayla dressed in a fluffy pink robe or giggling and smiling like any baby would. One video, which received 47.4 million views, shows Ayla getting dressed in a flowery dress — and she was showered with all the love.
“She’s so adorable!! these baby videos are so cute,”
wrote one person.
“Asking respectfully as a mom. Would you make more content to educate us on her condition I would love to learn more she’s beautiful,”
“I just read on doctor Google that there are only 14 documented cases. She is so darn special. Be proud mama,”
someone else chimed in.
But, like anything on the internet, people also make fun of Ayla’s face in the comments, which other TikTokers quickly shut down.
“Oh my looord. How cute are you!! ignore all those hurtful comments your little cuteness is just too sweet,”
wrote one user.
“You are a strong woman, you have a beautiful daughter, I’m sorry to see those thoughtless comments,”
While the family isn’t unaware of the comments, Vercher said she hopes others can
“be kind and accepting of all people.”
“As you would hope, people paid the same respect to your or your children if such events were to occur in your life,”
she said, adding that conditions “such as this” could really happen to anyone.
“Social media is a divided place. You can’t control the personalities of other people unfortunately.”
But the family has received an outpouring of love that outweighs the negativity.
“I am thankful we left the video posted as I have spoken to a number of mothers going through similar experiences,”
“We will not stop sharing our experiences and favourite memories as we are so proud.”